“It stops me from going out with my friends at times, I’ve got used to it over the years.
“I’ve had trouble finding a job because some things I couldn’t do because of the condition, but I’m studying photography at the moment which is great.”
The pair hope to raise awareness in the town of how debilitating the condition can be and how to help in the event of a seizure.
They will also raise funds for Epilepsy Action through the day’s proceeds of Ms Hitchens’ Creative Cakes market stall, in Uttoxeter Town Hall.
Lara Hitchens, of Ashbourne Road, said: “I’ve always wanted to do something to raise money and awareness for the charity and now I’ve got my own business this is the first chance I’ve had.
“We nearly lost Ben last year because of it, it has a huge effect on the family.
“He was in a coma and in intensive care and doctors told us there was a 50 per cent chance he wouldn’t come out of the coma.
“His seizures have affected every part of his life – he used to work for Fox’s Biscuits but obviously if he had a seizure he was not fit for work.
“As simple a thing as a can of beer can be the catalyst.
“It’s important people recognise the signs as it can be life-threatening, for example there was one occasion when Ben had an absence in a night club but the bouncers thought he was just drunk, but he doesn’t drink.
“When cooking he needs to have other people in the house just in case.
“He takes medication twice a day to manage it but it’s difficult for doctors to get the balance right – at the moment it seems to be working well.
“We’re still unsure what exactly caused his condition as it came on at the age of 15 it hasn’t been life long.
“On the stall we will be having purple themed bakes and jams and proceeds will go to Epilepsy Action.”
Epilepsy Action supporters are arranging awareness activities across the country today. More information can be found online at: www.epilepsy.org.uk or on Twitter with the hashtag #purpleday